General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Cancellation Of Lab Open Day (18 June 2015)

Professor Jon Cooper has just been informed by Kings College that his laboratory will be moving between the 15-19th June. As you are aware, this is the same week that we had planned to have the PSDL/BDFA Lab Open Day for…

Read More
Claudia Alejandra Soto – Fundraising

Claudia Alejandra Soto has just completed a Tough Mudder Challenge, ahead of doing the London 10K in July. If you would like to support her, visit her Just Giving Page!

Read More
WOLF Run 2015 – Jenny Shackleton

Jenny Shackleton ran the WOLF Run to raise money for the BDFA. Although really cold, she did an amazing job and completed the course! Have a watch of the video! https://www.youtube.com/watch?v=NCA-xqUoBPw&feature=youtube_gdata&app=desktop

Read More
BDFA Spring Newsletter & Bulletin

Our Newsletter and Bulletin are now available for download below. Please have a read! Spring Newsletter 2015 Spring Bulletin 2015

Read More

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease