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Ask The Board

As many of you know our annual family conference will be in Coventry at the RNIB centre on the 8-9th November. We are really looking forward to welcoming so many of you but if you are unable to attend we…

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Evelina London Study

Evelina London are looking to collect information from your child’s medical records as well as the results of any tests that your child may have had, and we may also ask your permission for researchers to use existing samples of…

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All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.