The BDFA are pleased to introduce a wonderful new book by Dr Ineka Whiteman in association with the Batten Disease Support & Research Association Australia. The book called 'Max and Abby' is told through the eyes of big sister Abby,…
All our Peer Befrienders are parents with lived experience of Batten disease. They have an understanding of the challenges you may face and know how isolating it can be feel to live with a Battens diagnosis.They are here and ready…
SAVE THE DATE International Batten Disease Awareness day is Friday June 9th! Help us to raise awareness, use the #, share posts and help us to turn orange for awareness day this year! More details to follow soon! #battenday2023 #battenawareness…