General: 01252 416323   |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
Family Conference 2014 Video

After the success that was our Family Weekend, we have the video highlights ready for you to see! Please watch and share! https://vimeo.com/112004121  

Read More
Kidz Up North – November 20th

Thursday, 20th November 2014 – 9.30am – 4.30pm EventCity, Barton Dock Road, Manchester, M17 8AS, (Near the Trafford Centre) More Info here Free entry, free parking, fully accessible! The show guide for this event is now attached. · Do you know…

Read More
We Need Your Feedback

After the amazing Family Conference weekend, we would love it if you could send us your feedback. Below is a very brief feedback form to fill in. You can download it, complete it and post it back to us. Lucy…

Read More
An Amazing Weekend

The BDFA Family Conference is over for another year. Lots of families, children and professionals attended. Once we have had chance to re group, we shall have a full review of the weekend. You can see more pictures on our Facebook…

Read More
Family Conference 2014

Day 1 of our Family Conference has finished. Seeing the families getting the chance to talk to each other and also to the professionals is exactly the point of the weekend. We have had research updates, family groups, activities for…

Read More
BDFA Newsletter – Issue 29

Our latest Newsletter is available to read and download. Click here to read it.

Read More

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.