General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
1 Day To Go(1)

It has been amazing to see all the support for Awareness Day so far this week, and we are looking forward to turning our social media orange tomorrow!


Thank you so much to everyone getting involved, please tag us in your posts so we can see what you’re up to!

BattenDay2024 #BattenDiseaseAwareness

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease