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BDSRA CONF Logo 2021

The BDFA is delighted to partner again with the BDSRA (Batten disease support and research association) for their annual conference that is yet again online.

As last year, we will be sending out conference boxes full of activities and conference programmes. We will also be sending out tshirts- free of charge for children and siblings but there will be a charge for adult t-shirts.

The BDFA is an official sponsor this year and will have a virtual booth… more info on this as soon as possible.

To sign up for the conference please follow this link, the BDSRA have put very precise instructions in! After you select your tickets you have to press on the ‘get tickets’ button to take you to the next stage.

Register for BDSRA’s 2021 Family Conference by visiting: https://registration.socio.events/e/bdsraconference

The UK deadline is the 21st of June to sign up.

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease