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BDSRA CONF Logo 2021

The BDFA is delighted to partner again with the BDSRA (Batten disease support and research association) for their annual conference that is yet again online.

As last year, we will be sending out conference boxes full of activities and conference programmes. We will also be sending out tshirts- free of charge for children and siblings but there will be a charge for adult t-shirts.

The BDFA is an official sponsor this year and will have a virtual booth… more info on this as soon as possible.

To sign up for the conference please follow this link, the BDSRA have put very precise instructions in! After you select your tickets you have to press on the ‘get tickets’ button to take you to the next stage.

Register for BDSRA’s 2021 Family Conference by visiting:

The UK deadline is the 21st of June to sign up.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.