General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
Blue Speech Bubble World Health Day Facebook Post (2)

*** UPDATE ***
BDFA MEDICAL WEBINAR- CHANGE OF TIME

Wednesday 22nd April- NEW TIME 4PM

Dear All,
 
Just to confirm our BDFA medical webinar tomorrow. Please note the change in time of 4pm.
 
Unfortunately Professor Gissen has had to move the time due to urgent commitments at GOSH. I hope you can still make it. Just a reminder to send questions through in advance if you can.
 
Please send any questions in advance to Amanda on her email amandamortensen@bdfa-uk.org.uk
 
If you have signed up already, the new Zoom link is on the BDFA Coronavirus closed group page.
 
Any questions, please ask!
 
Amanda

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease