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BDSRA online conference July 10th – 12th 2020


We are official partners of the BDSRA (Batten Disease Support and Research Association) in the US as they are holding their annual family conference entirely online. The conference will be delivered by an app and will include the agenda, programs and sessions (pre-recorded and live) and contact and connection points. There will be a virtual exhibit hall, live link to the Memorial and more. The Batten disease organisations in Canada and Australia have also joined and it promises to be a really international experience.

As families, you can log in at or to sign up.

Families who sign up will receive a ‘conference box’ with a programme, t-shirts and other goodies for children and siblings to enjoy.
Please can anyone who signs up to the conference let the BDFA know by dropping us an email on, so we can send you out your conference box full of goodies!

We are very excited about this opportunity and we are looking forward to seeing how our US partners translate the conference to an online entity.

Any questions please ask and email or

Thank you
The BDFA Team


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