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AGM 2023


NOTICE IS HEREBY GIVEN that the 2023 Annual General Meeting of the Batten Disease Family Association will be held via a Zoom video call between 10:30-11:30 am on Saturday 26th August. The meeting is scheduled to last about 1 hour.

To participate you will need to register for a ticket at…/bdfa-agm-2023-tickets…

We do hope that you will be able to join us at the event, the AGM is a legal requirement and held annually and we require as many members and families to join us as possible to enable to charity to move forward.
If you have any queries, please contact Lisa at
We look forward to seeing you there.

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 Thank you for doubling your donation!