Read the Annual Report 2014 here

The Batten Disease Family Association is the only UK Charity committed to supporting families, raising awareness and funding research into the devastating set of neurodegenerative diseases commonly known as Batten disease. The BDFA was founded in 1998 by a small group of parents of affected children and young people who made the commitment there and then that no family should face this journey alone.

We work with the scientific, medical, social care and educational professionals in the UK and worldwide to drive forward towards therapies and to ensure that families living with this diagnosis today have access to the best services available.