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Well the Christmas charity single made it all the way to the no 1 position in the official UK physical singles charts!!

Huge congratulations and thanks to our friend and supporter David McGovern for this amazing achievement. David has worked so hard to raise awareness of Batten disease, giving us a voice through music, which is such a special thing.

Thank you David from all of us at the BDFA and the whole Batten community 🧡

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