Stuie Petty, 7, lost his little brother Bertie last year at the age of 4. Bertie had CLN1 Batten disease. Stuie has invented a ‘Battens Curer’ machine. “My teacher asked us to design an invention to make the world a better place,” says Stuie. “I invented the ‘Battens Curer’ because my brother Bertie died of Battens and I wish he’d been cured.” If only we could make this a reality…#battenstories #siblingsareamazing
With your support we can help support families living with the devastating diagnosis of Batten disease
Thank you for making a donation to the work of the BDFA.
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease