General: 07354 486 586   |   Fundraising: 07511 821 181   |   Support: 0800 046 9832  
DCIM100GOPRO

We have places in a whole series of events over the next 9 months ranging from road runs, muddy runs, cycling and long walks! A lot of the events listed below have distance options; just contact us to find out more.

Download the list of events you can get involved with!

All money raised will be used to fund research into the NCL’s, in conjunction with Sparks, the children’s medical research charity. Please note, there are minimum fundraising targets for each event.

If you think you are up for the challenge, contact Kate and Gaynor, your fundraising team on 07876 682589 or email fundraising@bdfa-uk.org.uk

You can now also find us on Facebook at BDFA Fundraising

So dust off those trainers, get those wheels oiled and raise some money for essential research into the causes of Batten disease. Together, we WILL make a difference.

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease