The BDFA funded Clinical Nurse Specialist Katie Hanson has left her post as Batten CNS at Great Ormond Street Children’s Hospital. She can still be contacted, if needed by families, until a new Clinical Nurse Specialist for Batten disease is appointed. We are working with the team at GOSH to make this happen as quickly as possible and to minimise any disruption to families. We wish Katie all the best for her future career.