General: 07354 486586   |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Bbdf Logo

New advance to the Theranexus and BBDF Batten-1 program for juvenile
Batten disease (CLN3)

Read the press release from Beyond Batten and Theranexus regarding Phase I/II trial data at the link below.

They are hosting a Quarterly Family Research call on Thursday, January 19 at 9.30pm UK time to provide an update on Batten-1 (previously BBDF 101) and other scientific advances in CLN3 disease. 

You must register in advance to participate in the call. You can sign up at the link here….

If you are not able to participate, we will make the recording available. If you have specific questions, please send them in advance to so we can be sure to address them in the presentation.

We hope you can join them for this meeting.  

Make a donation:

To make a donation please click the button to the right.

For one week only during the Big Give Christmas Challenge, (Tuesday 28th November- Tuesday 5th December) our donate button will redirect you to our campaign page to make your donation which will be DOUBLED!

 Thank you for doubling your donation!