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New advance to the Theranexus and BBDF Batten-1 program for juvenile
Batten disease (CLN3)

Read the press release from Beyond Batten and Theranexus regarding Phase I/II trial data at the link below.

https://beyondbatten.org/wp-content/uploads/2023/01/Theranexus_PR_Batten-1_Program_VDEF.pdf

They are hosting a Quarterly Family Research call on Thursday, January 19 at 9.30pm UK time to provide an update on Batten-1 (previously BBDF 101) and other scientific advances in CLN3 disease. 

You must register in advance to participate in the call. You can sign up at the link here…. https://sam-firm.zoom.us/meeting/register/tZ0sf-mtqDoiG9DsthDUwnfwXHrYvJNR0UPO

If you are not able to participate, we will make the recording available. If you have specific questions, please send them in advance to info@beyondbatten.org so we can be sure to address them in the presentation.

We hope you can join them for this meeting.  

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease