Disability Living Allowance (DLA) is the main benefit to help meet the extra costs of having a disabled child. Yet when your child is in hospital for a long time DLA is taken away. Families tell us the extra costs don’t go away and stopping DLA heaps unbearable financial and emotional pressure on them. Contact a Family and the Children’s Trust think this is wrong. We are supporting the Mathieson family who are challenging this in court.
With your support we can help support families living with the devastating diagnosis of Batten disease
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease