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Eurodis

EURORDIS is conducting an internet-based survey in an effort to better understand how well patients are engaged in medical care, including the relationship with health care providers, the understanding of the therapy (its efficacy, possible difficulties, benefits as they see them), reasons why they agreed to take this therapy, as well as if they are satisfied with the information they were given.

This study is being conducted by EURORDIS, under the guidance of the DITA Task Force.

Please click here to access the survey (in English)

This survey is also available in other languages:
En français (French): ici
Auf Deutsch (German): hier
En español (Spanish): aqui
Italiano (Italian): qui
Português (Portuguese): aqui
Pусский (Russian): здесь

This survey has been prepared by EURORDIS DITA task force (Drug Information, Transparency and Access).

This study received a positive opinion from the INSERM Ethics Evaluation Committee /IRB00003888 on 9 June 2015.

EURORDIS thanks  you in advance.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.