General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Evilina

Evelina London are looking to collect information from your child’s medical records as well as the results of any tests that your child may have had, and we may also ask your permission for researchers to use existing samples of biological material (i.e. blood, skin cells, other cells) that may have been taken during the period of confirming the diagnosis. We will not ask your child to undergo any extra tests or procedures for the purpose of this study.

If you would be willing to help us with this study, please contact me on 0207 188 3998 or ruth.williams@gstt.nhs.uk for further information.

Read the full letter here

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.