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Help us produce the insurance information you need!

Accessing appropriate insurance can be a significant problem for many patients and families affected by genetic conditions. Patients and families affected by genetic conditions often find it difficult or impossible to access appropriate or affordable insurance cover.

Many patients are not aware what insurance companies are allowed, or not allowed, to ask them, or what they need to tell them when applying for insurance.

Genetic Alliance UK is now running a survey to understand patients’ experiences including any challenges they face, or concerns they have, when applying for insurance.

This information will help Genetic Alliance UK to update the resources available on their website to better meet the needs of the patient community.

You can take the survey Here

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.