HAVE YOU SIGNED UP YET???? 
‘13 in whatever way to raise 13k for Awareness Day
’We have launched an exciting fundraising event for Awareness Day to raise much-needed funds for the BDFA. It is an event that we hope the whole family can be involved in!
What is the event? There are 13 types of Batten disease and we are asking fabulous fundraisers to complete a challenge involving the number 13! It would be great if we can get a wide range of families involved, from across the spectrum of Batten disease.
Here are some ideas;
Run/walk 13 miles or 13km
Cycle 13 miles or 13km
Run/walk 13 laps of a field
13 times running up and down the stairs each day for a week
13 press-ups a day
13 steps a day
Make 13 cakes to sell and host a virtual coffee morning
13 words in Braille read each day
13 laps round the block in the wheelchair
13 sensory sessions/engagements
Any other creative idea!
Whatever your 13, you can choose to do it in one day or over the week that includes Awareness Day, 7th – 13th June. You will be able to add yourself as a fundraiser to our Just Giving page and tell everyone what you are doing and encourage people to support you with donations, as you share your story on social media.
It would be absolutely wonderful to have as many people in our Batten community involved, raising awareness and helping to raise funds for the continued work of the BDFA.
Just Giving page is now live, you can get to it HERE. https://www.justgiving.com/…/BattenDiseaseAwarenessDay2021