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Virtual ‘family’ meeting to share our future plans and financial position 

Friday 1st May from 2-3.30pm

The BDFA is pleased to invite you to a virtual ‘family’ meeting on Zoom to discuss our latest accounts (year end August 2019) and update on the board and trustees and our future plans. We are very pleased to say we are in a much stronger position than the previous year and this will hopefully bolster us against the effects of Covid-19. Current circumstances are obviously making fundraising difficult and we would welcome thoughts and assistance on how this can be restarted when the restrictions ease.

As you know, we have had to cancel the AGM that was due to take place this weekend. The Zoom meeting will give families an opportunity to ask questions about our latest accounts and we can share our plans. The ‘formal’ AGM business will take place at the family conference, at the end of October 2020 and we will run the formal business of both year ends (2019 and 2020) at the conference, as advised by the Charity Commission.

Our new treasurer Richard Whitbread will chair the meeting. Our acting Chair Pauline Docherty and other trustees as well as Chief Executive Amanda Mortensen will be on the call. 

Here is the link to our latest accounts

https://apps.charitycommission.gov.uk/Showcharity/RegisterOfCharities/CharityWithoutPartB.aspx?RegisteredCharityNumber=1084908&SubsidiaryNumber=0

If you would like to attend, please email admin@bdfa-uk.org.uk and we will send you the link to join.

Please let us know if you are a member or if you would like tobecome a member of the BDFA when you email.

We hope you can join us,

The BDFA Team

 

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease