CLN1 & CLN7 Communities,

We would like to bring to your attention this update regarding Taysha Gene Therapies involvement in both CLN1 & CLN7. We encourage you to read the community letter below from Taysha and reach out to us here at the BDFA or Taysha directly with any questions.

Read the update from Taysha HERE

To reach the BDFA with any questions, please email Amanda Mortensen,  amandamortensen@bdfa-uk.org.uk

To reach a member of the Taysha team, please send all questions to medinfo@tayshagtx.com.

Many thanks

BDFA Team