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Improving Rare Disease Education and Training for UK Nurses: hugely important initiative to ensure earlier diagnosis and better focussed care.

The British government recently launched a first-of-its-kind national initiative, “UK Strategy for Rare Diseases,” to promote earlier diagnosis and treatment among the more than three million patients living with rare disorders in the UK. It calls for all health care providers to receive additional education and training, especially the specialist and support staff—primarily nurses—that the government calls “a lifeline” to those with a rare disease. The initiative also funds primary and specialty care services as well as biomedical research.

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