One day to go till International Batten disease awareness day tomorrow!
This year the BDFA will be sharing stories and quotes from those at the heart of our work, the families. Our community has come together again this year to turn orange and raise awareness of this devastating disease.
To kick us off with the stories and quotes, let’s hear from Laura, mum to Anna who has CLN3.
#battenday2023 #showusyourorange #battenawareness #bdfa #battendisease