One day to go till International Batten disease awareness day tomorrow!
This year the BDFA will be sharing stories and quotes from those at the heart of our work, the families. Our community has come together again this year to turn orange and raise awareness of this devastating disease.
To kick us off with the stories and quotes, let’s hear from Laura, mum to Anna who has CLN3.
#battenday2023 #showusyourorange #battenawareness #bdfa #battendisease
With your support we can help support families living with the devastating diagnosis of Batten disease
Thank you for making a donation to the work of the BDFA.
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease