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LSD Collaborative

As you may know, the Batten Disease Family Association is a member of the LSD Collaborative. The LSD Collaborative is a group of charities and patient organisations that support patients with Lysosomal Storage Disorders (LSD). This group works together on issues that impact all patients with an LSD.

With the forthcoming General Election, the LSD Collaborative want to take the opportunity to influence those who will become our MPs. We have identified three key pledges that we would like Prospective Parliamentary Candidates to agree to. It is hoped that this will help the LSD Collaborative secure changes that will improve the lives of all our patients.

We would like your help to do this. These requests are more likely to be committed to if the Candidates are asked to pledge by their prospective constituents such as yourself. We need all the Candidates in an area to see the Manifesto with the pledge requests so please do pass the link below onto any candidates you know of. The full list of candidates will be available nearer to the Election from the Electoral Commission website.

Please send them the link to the Manifesto, asking them to commit to the pledges and to let you know if they can. If you get responses, please email them to as we will want to follow up with the Candidates who become MPs at the Election.

This is a great opportunity to really influence the next intake of MPs and, hopefully, the lives of everyone with an LSD.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.