Meet Sam and Alice who both have a diagnosis of CLN3. Mum Natalie shares her moving experience of diagnosis.
The BDFA would like to thank all of the families for being so courageous in sharing their thoughts and feelings in our posts to raise awareness this year.
#battenday2023
With your support we can help support families living with the devastating diagnosis of Batten disease
Thank you for making a donation to the work of the BDFA.
The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
Thank you so much for your support
How your donation can help
£5 a month
provides a support and information
folder for a newly diagnosed family
£20 a month
helps to run our family support services
£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease