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BDSRA De Brief Update Post


UK zoom session with Professors Jon Cooper (Washington University) and Sara Mole (UCL)

Come and find out all about the presentations at the NCL 2021 conference (held recently in St Louis in the US) and about the latest research into Batten disease.

Thursday 18th November 4.30pm GMT

To join the meeting, please email admin@bdfa-uk.org.uk to get the zoom link.

Hope to see you there

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease