General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
ZS Photo

We are delighted to announce that Dr Zlatko Sisic has become the new BDFA Chair. Zlatko has joined the Board of BDFA as the Medical and Scientific Lead in February 2020. He graduated from the Medical School in Belgrade in 1991 and spent 4 years working in Belgrade Accident and Emergency Department before coming to the UK to continue his post-graduate studies. Zlatko obtained a degree in

Chinese Medicine and Acupuncture in 1998, Masters in Business Administration in 2006 and Diploma in Pharmaceutical Medicine in 2020.

Zlatko joined the pharmaceutical industry in 2000 and has been involved in bringing medicines to patients suffering with ultra- rare disorders such as pulmonary hypertension, hereditary angioedema, mucopolysaccharidosis to name a few. Through his work in pharmaceutical medicine, Zlatko gained significant knowledge and experience in adult and paediatric neurology and diseases such as cerebral palsy, cervical dystonia, stroke and epilepsy.

Between April 2014 and January 2020, Zlatko worked in BioMarin where he was the Lead Medical Director for CLN2 and Brineura©. Zlatko was part of the team that successfully negotiated access to Brineura© to the UK patients. During his time in BioMarin, Zlatko developed lasting professional relationships with the leading international experts in NCL disorders.

In 1992 Zlatko was diagnosed with a very rare and life-threatening condition that has had a lasting impact on him and his family.

Through his own experience of suffering from an orphan disease, Zlatko has developed thorough understanding of the needs of both patients and their families. It is this unique combination of Zlatko’s knowledge, experience and professional relationships that makes him an ideal person to take the role of Chair of the BDFA.

Please join us in wishing Zlatko a successful career with the BDFA.

BDFA founder Pauline Docherty is stepping down as acting chair but will continue on the board as secretary for the next year. Thank you Pauline for all your dedication over the years.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.