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MaxAbby Book Cover Crop

The BDFA are pleased to introduce a wonderful new book by Dr Ineka Whiteman in association with the Batten Disease Support & Research Association Australia.

The book called ‘Max and Abby’ is told through the eyes of big sister Abby, shines a gentle light on the challenging topic of childhood dementia and disability, revealing the highs and lows of life as a sibling of a child with additional needs.Designed to educate, support and illuminate, this contemporary resource also inspires empathy and inclusion among siblings and peers of children with Batten disease and other childhood dementias.

Recommended for readers 5-12 years

The BDFA are offering the book to our Batten community for free, with just a £4 charge for postage.

The book is available in the BDFA shop on our website now, you can link to the shop below.

http://www.bdfa-uk.org.uk/shop-2/

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease