New date for AGM

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UPDATE NEW DATE of Annual General Meeting of the Batten Disease Family Association

Notice is hereby given that the 2021 Annual General Meeting of the Batten Disease Family Association to be held via Zoom video-conferencing on Saturday 9th July 2022, 10am.

We are asking anyone wishing to join us to sign up via the Event bright link. The link for the zoom meeting will then be sent to all who have signed up.

Click on link below to sign up

https://www.eventbrite.co.uk/e/326068749407

All are warmly invited to attend. We look forward to seeing you there

Many thanks

The BDFA Team

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease