General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Screen Shot 2014 11 05 At 16.49.43

This leaflet was designed to answer some of your questions about what the equipment needs will be for a child or young person living with a diagnosis of an NCL disease. The BDFA Support and Advocacy Partner is available to answer any questions you might have concerning the information in this leaflet. They can be contacted on or 0800 046 9832.

Download Here

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.