General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
Neil Dunford

Life-changing treatment on the NHS for children with rare, deadly disease

We are beyond delighted to announce that Brineura has been approved. Further details to come.

Families have been absolutely incredible in their strength and resilience in getting this over the line.

More news to follow soon, here is the link to NHS England’s announcment today.


Thankyou so so much for all the support!


Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.


All donations help us to provide the best support we can to families affected by Batten Disease.


Thank you for your support.