General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
BDFA Logo WEB

**NICE HST Meeting Postponed until Wednesday 25th April 2018**

Today, we have been notified that unfortunately the next NICE HST meeting, which was due to take place on 20th March 2018 has been postponed until Wednesday 25th April 2018. We understand how frustrating this is for the community and how disappointing this news will be. The BDFA are doing all that we can to ensure that there is a positive outcome from this process and we understand that although this is frustrating it gives all parties involved time to reflect and negotiate for the best outcome for all patients. We look forward to working with all parties to achieve a good outcome for the patients and their families.

If you have any questions or queries please contact Harriet: support@bdfa-uk.org.uk 07876712553

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.