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Awareness Day 2020 2

ONE WEEK TO GO until International Batten Disease Awareness Day!

What you can do to raiseawarenes and be orange on the day?

Use #battendiseaseuk #battenday2020 on your social media posts

Dress in orange, but not just you, the dog, the cat the kids! post to social media and dont forget to tag us and use the hashtags

Use the Facebook frame for the day on your profile picture

Share your story- we already have many of your wonderful stories, photos and videos. It’s not too late to contribute

Send a tie or scarf to your MP with a handwritten note, lets get as many of them wearing them as possible

We know lots of you have got amazing plans, let us know and we will share you activities on our social media pages during the day

Email to admin@bdfa-uk.org.uk or post to our facebook

#battenday2020 #battendiseaseuk #bdfa

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease