Hi everyone we would like to share this picture of our daughter Charlotte with you, she has CLN3. As a leap year baby she was 32 years old on the 29th February 2024 on Rare Disease day. As you see she is still super cheerful and a rare star to us.

We would like to offer this photo to the Battens Community to demonstrate hope, perhaps longevity and joy that sustains us even after all this time. Love to all, keep going, keep smiling.