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We are delighted to announce that Duncan Brownnutt and Rod Wark have been awarded the UK Prime Minister’s award of the Points of Light. The award recognises those outstanding volunteers who make a change and Duncan and Rod have certainly done that to raise awareness and much needed funds for the BDFA. Well done to both of you, a truly deserved recognition.

Prime Minister David Cameron said:

“With their remarkable cycling challenge, Duncan and Rod have raised a fantastic amount of money to fund research and support for Batten Disease. I know this is a cause very close to their hearts, and I am delighted to be able to recognise their fundraising by making them Points of Light.”

Read the full story from The Prime Minsiter’s Office here

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease