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Bigbox 09mar2016

Rare disease patients, family members and patient representatives across Europe can now register for Rare Barometer Voices, a new interactive survey panel available in 23 languages, which collects the experiences of people that are living with or affected by a rare disease. Please register here

Rare Barometer Voices seeks to make the voice of rare disease patients stronger and ensure it is heard across Europe.

For more details about the survey and about Rare Barometer Voices, please go to EURORDIS website

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.