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Rare Disease Day

Rare Disease Day takes place on the last day of February each year. This year its the 29th February 2016

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Show your support for #RareDiseaseDay2016 with a personalized header and profile picture.

This year BDFA is part of the Rare Disease Day with the participation at two events in London and at the main event in San Diego and we would like you to be part of this special day. So we made a frame for you to use it to insert your digital photo into and then to upload it to your Facebook or Twitter accounts.

If you need any help to put your photo into the frame, please email your photo to info@perproductions.co.uk, until February 29

Download your Rare Disease Day Frame to add your photo

Download the Facebook Header Here

Donate to the work of the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease