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Rare Disease Day

Rare Disease Day takes place on the last day of February each year. This year its the 29th February 2016

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Show your support for #RareDiseaseDay2016 with a personalized header and profile picture.

This year BDFA is part of the Rare Disease Day with the participation at two events in London and at the main event in San Diego and we would like you to be part of this special day. So we made a frame for you to use it to insert your digital photo into and then to upload it to your Facebook or Twitter accounts.

If you need any help to put your photo into the frame, please email your photo to, until February 29

Download your Rare Disease Day Frame to add your photo

Download the Facebook Header Here

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.