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Rare Disease Day takes place on the last day of February each year. This year its the 28th February 2017

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

Show your support for #RDD2017 with a personalized header and profile picture.

You can download the pictures below and add your own photos to them.

Or to make it easier, you can once again contact Paul at and he will do it all for you and email them back ready for you to share! Just send him your photos and tell him what you need, he will make sure they are all sorted for you.

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Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.