Dear CLN2 and CLN3 families,
Lottie Morison is a speech pathologist and researcher leading a project on speech and language in individuals with CLN2/CLN3. She has had an encouraging response so far but Lottie has asked if we might be able to reach out to our family communities again. Lottie and the team are hoping to assess all participants by March next year, so the study can be prepared for publication as soon as possible.
If you have any questions about the study, Lottie would be more than happy to hear from you directly.
The study flyer is attached for your reference.
Dr Jo Nightingale