Happy #BattenDay2022 to all of the families in our Batten community and particularly thinking of those who are remembering their loved ones today. There is already a distinctly 'orange' buzz on social media. We are kicking off the day with…
International Batten Disease Awareness Day Tuesday 9th June 2020 4 DAYS TO GO! We are getting very excited about Batten disease awareness day next Tuesday 9th June which we are sharing with international peers. We are kicking off our awareness…
The UK Batten Disease Awareness Day will take place on Friday 7 June 2019. This year it is crucial that it is as impactful as possible. We need families, friends and supporters to tell everyone about Batten disease, raise awareness…