The UK Batten Disease Awareness Day will take place on Friday 7 June 2019. This year it is crucial that it is as impactful as possible. We need families, friends and supporters to tell everyone about Batten disease, raise awareness and generate funds.

More details of how you can get involved will be published on the website over the days leading to the date. We are very keen to turn as much of the UK orange as possible! Whether it is lighting a building or landmark, wearing orange to work and school, or decorating your workplace, we want everywhere to be orange. We will be giving instructions on how to share your pictures of the day.

Thank you in advance for your help in making Batten Disease Awareness Day 2019 a huge success.