Dear Batten community, As many of you know, we have been awaiting further news regarding the future of the CLN3 and CLN6 gene therapy clinical programs led by Amicus Therapeutics. Today, we wish to share an important update relating to…
With your support we can help support families living with the devastating diagnosis of Batten disease
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The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.
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folder for a newly diagnosed family
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£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease