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Today, We Stand Together For Rare Disease Day! 29th February 2024

Let's raise awareness and support for those living with rare diseases. Every person battling a rare condition is a warrior, showing incredible strength, resilience, and determination in the face of unique challenges. Let's shine a spotlight on the importance of…

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Rare Disease Day 28th Feb 2022

Join the Global Chain of Lights! Here is how.... Show your support for #RareDiseaseDay by lighting up your home, office or school on 28 February! By coming together to #LightUpForRare we can raise awareness, show solidarity, and be part of…

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Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease