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Thank You

Here at the BDFA we want to say a MASSIVE THANK YOU to all of our families in the UK who attended the BDSRA annual family conference this past weekend, and thank you to all the other families all over the world!

It was another really special event and we are so grateful to get to be a part of it. The BDSRA did another amazing job this year! WELL DONE!

Thank you for all your hard work in the organisation, you should be really proud!

We hope our UK attendees liked their family boxes this year, and got some valuable information from the online sessions.

If you didn’t manage to attend or you missed any sessions, they are online to watch and catch up.

Contact us to find out how. THANK YOU ALL! 🧡🧡🧡

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.