General: 07876 682589    |   Fundraising: 07745 210212   |   Support: 0800 046 9832  
Image 1

Click here to download the Paper

This paper addresses some findings and experiences from the Juvenile Neuronal Ceroid Lipofuscinosis and Education Project (2014 – 2017). Juvenile Neuronal Ceroid Lipofuscinosis (JNCL) is also called CLN3 disease, Spielmeyer-Vogt Syndrome and Batten Disease. JNCL is used in this paper.

Developmental patterns of JNCL in relation to principles for pedagogical interventions are discussed in this paper. It is believed that pedagogical interventions can contribute to an improved quality of life for individuals with JNCL.

This paper is a co-operative venture between Statped Heimdal in Norway, University of Oslo in Norway, The Norwegian NCL Family Organisation, The Danish NCL Family Organisation, The Vision Center Refsnæs in Denmark, The Bildungszentrum für Blinde Sehbehinderte Hamburg in Germany, The Batten Disease Family Association in UK, The WESC Foundation in England, The Royal Blind Asylum and School, Edinburgh in Scotland, NCL-Gruppe Deutschland in Germany, The Valteri Centre for Learning and Consulting, Onerva in Finland and The Finnish Federation of the Visually Impaired.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

All donations help us to provide the best support we can to families affected by Batten Disease.

Please do leave us a note about the donation or fundraising so we know what you have been

doing to support us and who to thank.

Thank you for your support.