On Friday 28 April 2017 we will mark Undiagnosed Children’s Day.
Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Not having a diagnosis can be isolating, and often means that families find it difficult to access basic information and support.
There will be activities throughout April -including an Instagram challenge – details of how to get involved can be found here.