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On Friday 28 April 2017 we will mark Undiagnosed Children’s Day.

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Not having a diagnosis can be isolating, and often means that families find it difficult to access basic information and support.

There will be activities throughout April -including an Instagram challenge – details of how to get involved can be found here.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.

You can also TEXT DONATE 

Text the words BDFA15 £2 / £5 / £10 to 70070

All donations help us to provide the best support we can to families affected by Batten Disease.

Thank you for your support.