General: 07876 682589    |   Fundraising: 07876 682589   |   Support: 0800 046 9832  
17796380 1412179478803524 1562128529251256415 N

On Friday 28 April 2017 we will mark Undiagnosed Children’s Day.

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Not having a diagnosis can be isolating, and often means that families find it difficult to access basic information and support.

There will be activities throughout April -including an Instagram challenge – details of how to get involved can be found here.

Make a donation:

To make a donation to the BDFA please click the button below which will take you Paypal.


All donations help us to provide the best support we can to families affected by Batten Disease.


Thank you for your support.