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On Friday 28 April 2017 we will mark Undiagnosed Children’s Day.

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Not having a diagnosis can be isolating, and often means that families find it difficult to access basic information and support.

There will be activities throughout April -including an Instagram challenge – details of how to get involved can be found here.

Make a donation:

To make a donation please click the button to the right.  This link will then take you to a PayPal page where a donation direct to us can be made.

The amount you enter is your choice and PayPal can collect the funds from a debit or credit card account.

Thank you for your donation.