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CLN7 Batten Disease Research

Elpida Therapeutics will be hosting an open virtual meeting via Zoom on Thursday,January 18, from 3-4 p.m. EST (8-9pm UK time), to provide an update on the ongoing gene therapy trial for treating CLN7 Batten disease, which has been led by the University of Texas Southwestern Medical Center.

Elpida will also be discussing their plans to expand the treatment to more patients in the future. Please note that this meeting is primarily for families affected by CLN7 disease but is open to all Batten families, researchers, clinicians, patient advocacy groups, etc. who would like to attend.

Join the Zoom meeting by clicking the link below:

https://us02web.zoom.us/j/9890666291?omn=87196549060

Please contact Jo or Liz if you have any questions.

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease