Would you like the support of a trained BDFA Peer Befriender?

General: 07354 486 586 | Fundraising: 07511 821 181 | Support: 0800 046 9832

All our Peer Befrienders are parents with lived experience of Batten disease. They have an understanding of the challenges you may face and know how isolating it can be feel to live with a Battens diagnosis.They are here and ready to listen to you on a regular basis, via Zoom or phone calls.

“Meeting Valerie via the Peer Befriending service has been wonderful. We now speak weekly by shared messages or FaceTime and it really helps us both to speak with another mum who ‘truly gets it’. Thank You.” Maria, Mum to William 19 CLN3

Above: Some of our Peer Befrienders – Sophie, Val, Gail & Mimi(Peer Befriending Coordinator)

For more information please contact Mimi Petty, Peer Befriending Coordinatormimpetty@bdfa-uk.org.uk

Donate to the BDFA

With your support we can help support families living with the devastating diagnosis of Batten disease

DONATE

Thank you for making a donation to the work of the BDFA.

The BDFA receives NO funding from Government and are only able to carry out our work because of the strong commitment of our volunteers and fundraisers.

Thank you so much for your support

How your donation can help

£5 a month
provides a support and information
folder for a newly diagnosed family

£20 a month

helps to run our family support services

£50 a month
enables us to run training workshops
for professionals to educate them on
Batten disease