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NICE HST Meeting Postponed Until Wednesday 25th April 2018

**NICE HST Meeting Postponed until Wednesday 25th April 2018** Today, we have been notified that unfortunately the next NICE HST meeting, which was due to take place on 20th March 2018 has been postponed until Wednesday 25th April 2018. We…

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Update On BDFA Chief Executive

As the 1st of March arrives, it is time to say goodbye and good luck to Andrea as she leaves the BDFA and starts her new job. The Board of Trustees and the Staff thank Andrea for her hard work,…

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NICE Say NO To The Use Of Cerliponase Alfa For Children With CLN2 (Late Infantile Batten Disease)

NICE say NO to the use of Cerliponase Alfa for children with CLN2 (Late Infantile Batten disease) BDFA Summary of NICE Decision NICE ECD Report SIGN THE PETITION HERE This decision means that children diagnosed with this devastating disease in…

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